There is a definite need for more support and advocates for people with disabilities. Valley resident, Evelyn Yelinek, knows all too well about the needs people with disabilities have and recently, she’s been appointed to the Manitoba Intellectual Disability Advisory Council to share her experience and advocacy on certain topics.
“There was a call for interest on the Manitoba government website and I applied,” said Yelinek. “I first noticed that some people were being treated disrespectfully when I was in Grade 6. I recall telling a teacher that he was being a bully. This resulted in being sent to the office. I told the principal what happened. I was thanked and was asked to report back if I felt things like this happened again, but I should not address the teacher myself because then I was the one being disrespectful. Being the cheeky child that I was, my response was that maybe the teacher should be a better role model.
“I have a cousin who has Down Syndrome. When she came to visit, she was not allowed to play with us; she could only sit on the couch and look at books. I thought that she had a very sad life. When I asked my aunt why I was told it was not safe for her because she was very fragile.
“I also had an uncle who lived with us for a while,” said Yelinek. “He wasn’t able to care for himself and eventually he was placed at MDC because his behaviours made it unsafe for him and us. Then I became a mom to a couple of great guys. You really don’t know what love is until you have a child. My guys were born three and a half months early and I was determined to make their world very much unlike the one I witnessed as a young girl.”
Yelinek’s desire to advocate for fairness for others really developed through her own experiences as a mother.
“When I was a new mom, I was made to feel like I did something wrong that caused the early births,” said Yelinek. “The social worker constantly threatened my rights as a parent. She said that she was an educated woman and didn’t feel that she could care for the boys, so what would make me think I could? I felt she was judging me, and I was also feeling that way by some friends and family too.
“Every birthmark and bruise had to be explained. Little kids do get bumps and bruises. Add being blind to the mix, any educated person should understand that they too would get bumps and bruises.
“Then there were issues getting funding for support workers at daycare; issues getting funding for EAs; very little funding was available for respite because we lived in a rural area; the guys were not allowed to go on many field trips because of lack of support staff; while EAs came and went,” said Yelinek.
“Then comes adulthood and needing to rely on government assistance. This program was designed to help people for a short time until they can get back on their feet. It is not acceptable in any way to subject already vulnerable adults to a life of poverty in which the rent budget is so little that safe housing is very challenging, if not impossible to find. Some families have to have their adult children placed in homes outside their home community because of a lack of proper homes.
“These are just some of my experiences. People wonder why families of people with disabilities have a hard time trusting,” said Yelinek. “I never want any other mom to feel the way I did.”
Along Yelinek’s personal journey, she met some incredible people who helped her along the way. It was through their guidance that she found the inspiration to keep advocating for people with disabilities and to demand fairness for them on many issues.
“I have met some wonderful staff and friends along the way,” said Yelinek. “Dr. Rajani, a pediatrician, and Deb Ramsay, a mom from the Parents of Premature Babies club, were the first two people who provided amazing support. Deb and I are still close friends. Lois Paske, OT/PT from CNIB, told me that I was a great mom; she empowered me to stand up to the social worker. She and Dr. Rajani wrote letters on my behalf to that social worker.
“Then I moved to the Valley and met some wonderful workers here. Iris Jonsson, a Children’s Disability worker, heard my story and took me under her wing. I started working for the Department of Families and continued to be mentored by Lee Greig and Donna-Jean Slack, who were program managers, to become the best worker I could be. I was often matched up to work with families who had special needs kids; some were children and some were adults.
“At the Department of Families, I met a wonderful man named Phil Boguski, who was the Vocational Rehab Worker,” said Yelinek. “He provided so much guidance to me as a worker and a mom. I volunteered on the Association for Community Living board and met many wonderful people who attended the day program. My fellow board members were passionate about making this world our children are part of life, a much better place.
“Volunteering on the Community Mental Health board provided.